Autism Provision by NHS Primary Care Trust 2012

Unfortunately, as I was partially through uploading all of the results of my FoI requests, The Health and Social Care Act 2012 abolished the Primary Care Trust system and replaced them with the Clinical Commissioning Groups, rendering all of my work irrelevant at a stroke. In frustration, I abandoned the project halfway through, but you can continue to see the work that I had completed below. 

Obtaining an autism assessment through the NHS is a byzantine process which varies hugely from postcode to postcode. I started a project of obtaining details of provision of adult and services for adults and children from every Primary Care Trust in the country, so that parents and autistic people could find out how best to access NHS services.

I asked each PCT, or regional equivalent, to answer six questions:

1. How many adults they have with a diagnosis of autistic spectrum disorder (with any separate statistics for Asperger’s, HFA, LFA) in the area;
2. How many children;
3. What diagnostic services are available to a) adults and b) children;
4. What agencies or teams exist that work with autistic people, provide support/services, strategise, etc.
5. An email address/website for each of these agencies or teams where possible.
6. What the typical process should be for an adult in the area first asking their GP for an assessment for autistic spectrum disorder to receiving a diagnosis/support.

Each PCT seems to do things differently, with some telling me that the NHS isn’t responsible for keeping statistics on autistic people to the lovely person who created a table for me indicating number of registered autistic adults in their area, by form of autism, for every year since 2007.

If you see a “responded” in the table but the documents aren’t there, that’s because I have not yet redacted/renamed the response sent. If you are looking for that information, please contact me here and I will prioritise it for you.

I’m also hoping to take this raw data and create charts/maps/ranking systems, to make it easier to compare and contrast different areas (and eventually shame the terrible ones into creating better services). If you have any skills in this area and would like to help, I would love to hear from you. Contact me here.

 Key

Contacted: The PCT has been contacted with the Freedom of Information request

Acknowledged: The PCT has sent a notice that the 20 day time period for the FOI has begun.

Responded: The PCT has sent the information requested or has not been able to find it.

Followed up: The PCT has not acknowledged the request, or has but never replied, and has been contacted again.

See…: Some PCTs have outsourced their FOI obligations to other PCTs, who have responded on their behalf.

Name	FOI Email	Status of Request	Documents	Last Updated	Notes
Ashton, Leigh and Wigan PCT	foi@alwpct.nhs.uk	Responded	Doc	16th August
Barking and Dagenham PCT	foi@nelft.nhs.uk	See North East London
Barnet PCT	foi@nclondon.nhs.uk	See North Central London		9th October
Barnsley PCT	FoI.FoI@barnsleypct.nhs.uk	Responded	Text	16th August
Bassetlaw PCT	foi.requests@bassetlaw-pct.nhs.uk	Responded	Text	13th January
Bath and North East Somerset PCT	info@banes-pct.nhs.uk	Followed up		10th October
Bedfordshire PCT	Julie.O'Brien@bedfordshire.nhs.uk	Responded	Text	13th January
Berkshire East PCT	Foi.bepct@berkshire.nhs.uk	See Berkshire West		9th October
Berkshire West PCT	Foi.bwpct@berkshire.nhs.uk	Acknowledged		9th October
Birmingham East and North PCT	bham-solihull.foi@nhs.net	See Birmingham and Solihull (Joint Trust)	Text	16th August
Blackpool PCT	foi@blackpool.nhs.uk	Acknowledged		9th October
Bolton PCT	foi@bolton.nhs.uk	Responded.	Text	3rd July
Bournemouth and Poole Teaching PCT	foi-requests@bp-pct.nhs.uk	Responded		20th July
Bradford and Airedale Teaching PCT	Jason.Joy@bthft.nhs.uk	Contacted		9th October
Brent Teaching PCT
Brighton and Hove City PCT	spctc.foi@nhs.net	See NHS Sussex	Docx	23rd June
Bristol PCT	Kathryn.Tucker@bristol.nhs.uk Lucy.Powell@bristol.nhs.uk	Responded	PDF	19th July
Bromley PCT	foi@nw.london.nhs.uk	See North West London
Buckinghamshire PCT	foi@oxfordshirepct.nhs.uk	Responded	Doc	16th August
Bury PCT	glenn.mosoph@nhs.net	Responded	Text	28th August
Calderdale PCT	information.officer@calderdale.nhs.uk	Contacted		9th October
Cambridgeshire PCT	Karon.Dahmer@cambridgeshirre.nhs.uk	Responded	PDF	26th July
Camden PCT	foi@nclondon.nhs.uk	See North Central London		9th October
Central and Eastern Cheshire PCT	christopher.gray3@nhs.net	Responded	Populations only. No services.	19th July
Central Lancashire PCT	Beki.Pugh@staffordshirecss.nhs.uk	Responded	Doc	16th August
City and Hackney Teaching PCT	Jonathan.Ball@elc.nhs.uk	See North East London (Joint Trust)	Doc	16th August
Cornwall and Isles Of Scilly PCT	ohn.Murphy@ciospct.cornwall.nhs.uk	Responded	Doc	11th July
County Durham PCT	cd-pct.foi@nhs.net	Responded	Docx	9th July
Coventry Teaching PCT	foi@coventrypct.nhs.uk	Responded	Text	16th August
Croydon PCT	foi@swlondon.nhs.uk	See South West London		25th June
Cumbria Teaching PCT	foi@cumbriapct.nhs.uk	Contacted		9th October
Darlington PCT	cd-pct.foi@nhs.net	Contacted		9th October
Derby City PCT	foirequest@derbycitypct.nhs.uk	See Derbyshire County		9th October
Derbyshire County PCT	FOI@derbyshirecountypct.nhs.uk	Responded		9th October
Devon PCT	foi.devonpct@nhs.net.	Responded	PNG	27th June, 2012
Doncaster PCT	FOIDoncasterPCT@doncasterpct.nhs.uk	Responded	Text	12th July
Dorset PCT	joyce.green@dorset-pct.nhs.uk	Contacted		9th October
Dudley PCT	rebecca.ford@dudley.nhs.uk	Responded	Doc	16th August	Responsible for Wolverhampton?
East Lancashire Teaching PCT	foi@eastlancspct.nhs.uk	Acknowledged		9th October
East Riding Of Yorkshire PCT	Eroy-pct.FOI@nhs.net	Acknowledged		9th October
East Sussex Downs and Weald PCT	spctc.foi@nhs.net	See NHS Sussex	Docx	23rd June
Eastern and Coastal Kent PCT	foi@nhs.net	Responded		18th July
Enfield PCT	foi@nclondon.nhs.uk	See North Central London		9th October
Gateshead PCT	FOI@sotw.nhs.uk	See South of Tyne and Wear
Gloucestershire PCT	PCT.FreedomofInformation@glos.nhs.uk	Responded	Docx	16th August
Great Yarmouth and Waveney PCT	gyw-pct.FOI@nhs.net	Responded	Text	3rd July
Greenwich Teaching PCT	margaret.benbow@nhs.net	Responded	PDF	27th June
Halton and St Helens PCT	NHSM.FoI@liverpoolpct.nhs.uk	Followed up		10th October
Hammersmith and Fulham PCT	foi@nw.london.nhs.uk	See North West London
Hampshire PCT	foi@hampshire.nhs.uk	Acknowledged		9th October
Haringey Teaching PCT	foi@nclondon.nhs.uk	See North Central London		9th October
Harrow PCT	foi@nw.london.nhs.uk	See North West London		23rd June
Hartlepool PCT	foi@tees.nhs.uk	See NHS Tees (Joint Trust)	Doc	16th August
Hastings and Rother PCT	spctc.foi@nhs.net	See NHS Sussex	Docx	23rd June
Havering PCT	foi@nelft.nhs.uk	See North East London
Heart Of Birmingham Teaching PCT	bham-solihull.foi@nhs.net	See Birmingham and Solihull (Joint Trust)	Text	16th August
Herefordshire PCT	foilead@hertfordshire.nhs.uk	Contacted		9th October
Hertfordshire PCT	FOILead@hertfordshire.nhs.uk	Acknowledged		10th October	Recommends Council & Partnership Trust too
Heywood, Middleton and Rochdale PCT	Elaine.Bottomley@hmr.nhs.uk	Responded	Text	16th August
Hillingdon PCT	foi@nw.london.nhs.uk	See North West London
Hounslow PCT	foi@nw.london.nhs.uk	See North West London
Hull Teaching PCT	Eroy-pct.FOI@nhs.net	See Humber
Isle Of Wight NHS PCT	FreedomofInformation@iow.nhs.uk	Responded	Doc	16th August
Islington PCT	foi@nclondon.nhs.uk	See North Central London		9th October
Kensington and Chelsea PCT	foi@nw.london.nhs.uk	See North West London
Kingston PCT	foi@swlondon.nhs.uk	See South West London		25th June
Kirklees PCT	Enquiries@kirklees.nhs.uk	Responded	Text	16th August
Knowsley PCT	NHSM.FoI@liverpoolpct.nhs.uk	Followed up		10th October
Lambeth PCT	margaret.benbow@nhs.net	Responded	PDF	28th June
Leeds PCT	foi.enquiry@leedspct.nhs.uk	Responded		18th July
Leicester City PCT	lcfoi@leics.nhs.uk	Responded		19th July
Leicestershire County and Rutland PCT	lcfoi@leics.nhs.uk	See Leicester City		19th July
Lewisham PCT	margaret.benbow@nhs.net	Responded		23rd June
Lincolnshire Teaching PCT	information.governance@lpct.nhs.uk	Contacted		9th October
Liverpool PCT	NHSM.FoI@liverpoolpct.nhs.uk	Followed up		10th October
Luton PCT	Danny.King@luton-pct.nhs.uk	Responded	Text	16th August
Manchester PCT	Catherine.Wilson@manchester.nhs.uk	Responded - no information, referred on		18th July
Medway PCT	foi@nhs.net (really)	Responded	PDF	23rd June
Mid Essex PCT	me-pct.foi@nhs.net	Followed up		10th October
Middlesbrough PCT	foi@tees.nhs.uk	See NHS Tees (Joint Trust)	Doc	16th August
Milton Keynes PCT	FoIenquiry@northants.nhs.uk	Responded	Text	16th August
Newcastle PCT	foi@newcastle-pct.nhs.uk	See North Tyneside		25th June
Newham PCT	Jonathan.Ball@elc.nhs.uk	See North East London (Joint Trust)	Doc	16th August
Norfolk PCT	Helen.Jackson@norfolk.nhs.uk	Responded	Text	13th August
North East Essex PCT	e.mason1@nhs.net	Responded	Doc	13th July
North Lancashire Teaching PCT	FOI@northlancs.nhs.uk	Responded	PDF	27th July
North Lincolnshire PCT	Eroy-pct.FOI@nhs.net	Contacted		9th October
North Somerset PCT	Kathryn.Tucker@bristol.nhs.uk Lucy.Powell@bristol.nhs.uk	Responded	PDF	20th July
North Staffordshire PCT	Beki.Pugh@staffordshirecss.nhs.uk	Responded		25th June
North Tyneside PCT	foi@northoftyne.nhs.uk	Responded		9th October
North Yorkshire and York PCT	nyy-pct.FOI@nhs.net	Responded	Doc	16th August
Northamptonshire Teaching PCT	FoIenquiry@northants.nhs.uk	Responded	Text	16th August
Nottingham City PCT	Freedom.ofInformation@nottinghamcity.nhs.uk	Responded	Text	16th August
Nottinghamshire County Teaching PCT	FOI.Requests2@nottspct.nhs.uk	Responded	"Contact County Health Partnerships"	25th June
Oldham PCT	deborah.waterhouse@nhs.net	Responded	PDF	18th July
Oxfordshire PCT	Rachael.Demain@oxfordshirepct.nhs.uk	See Buckinghamshire	Doc	26th June
Peterborough PCT	p-pct.pals@nhs.net	Responded	PDF	23rd June
Plymouth Teaching PCT	askplymouth@nhs.net	Acknowledged		9th October
Portsmouth City Teaching PCT	foi@hampshire.nhs.uk	See Hampshire
Redbridge PCT	foi@nelft.nhs.uk	See North East London
Redcar and Cleveland PCT	foi@tees.nhs.uk	See NHS Tees (Joint Trust)	Doc	16th August
Richmond and Twickenham PCT	foi@swlondon.nhs.uk	See South West London		25th June
Rotherham PCT	Deborah.Taylor@rotherham.nhs.uk	Responded	Text	16th August
Salford PCT	Freedom.ofInformation@salford.nhs.uk	Followed up		10th October
Sandwell PCT	Communications@sandwell-pct.nhs.uk	Followed up		10th October
Sefton PCT	NHSM.FoI@liverpoolpct.nhs.uk	Followed up		10th October
Sheffield PCT	shef-pct.foi@nhs.net	Responded	Text	13th January
Shropshire County PCT	FOI@shropshirepct.nhs.uk	Contacted		9th October
Solihull PCT	bham-solihull.foi@nhs.net	See Birmingham and Solihull		25th June
Somerset PCT	foi@somerset.nhs.uk	Responded	PDF	10th July
South Birmingham PCT	bham-solihull.foi@nhs.net	See Birmingham and Solihull (Joint Trust)	Text	16th August
South East Essex PCT	Amanda.Shears@see-pct.nhs.uk	Responded	Text	16th August
South Gloucestershire PCT	FOI@sglos-pct.nhs.uk	Responded - referred on as do not have information	PDF	18th July
South Staffordshire PCT	Beki.Pugh@staffordshirecss.nhs.uk	Responded		17th July
South Tyneside PCT	FOI@stft.nhs.uk	See South of Tyne and Wear		9th October
South West Essex PCT	http://www.southessex.nhs.uk/foi/foicontact.asp	Contacted		9th October
Southampton City PCT	foi@hampshire.nhs.uk	See Hampshire
Southwark PCT	inforequest@southwarkpct.nhs.uk	Followed up		10th October
Stockport PCT	sto-pct.FOI@nhs.net	Replied - exempt from FOI	PDF	6th July	Intended for future publication
Stockton-on-Tees Teaching PCT	foi@tees.nhs.uk	See NHS Tees (Joint Trust)	Doc	16th August
Stoke On Trent PCT	Beki.Pugh@staffordshirecss.nhs.uk	See South Staffordshire		25th June
Suffolk PCT	foi@suffolkpct.nhs.uk	Responded		9th October
Sunderland Teaching PCT	FOI@sotw.nhs.uk	See South of Tyne and Wear
Surrey PCT	FOI@surreypct.nhs.uk	Responded	PDF	16th August
Sussex PCT Cluster	SPCTC.foi@nhs.net	Responded	Docx Doc2	19th July
Sutton and Merton PCT	PALS@smpct.nhs.uk	See South West London		23rd June
Swindon PCT	Barry.Thorp@swindon-pct.nhs.uk	Responded		24th July
Tameside and Glossop PCT	jackiegordon@nhs.net	Responded	PDF	31st July
Telford and Wrekin PCT	FOI@telfordpct.nhs.uk	Contacted		9th October
Tower Hamlets PCT	Jonathan.Ball@elc.nhs.uk	See North East London (Joint Trust)	Doc	16th August
Trafford PCT	Deb.Hulme@trafford.nhs.uk	Responded - referred on	Doc	3rd July
Wakefield District PCT	Kirsty.Box@wdpct.nhs.uk	Responded	Docx	12th July
Walsall Teaching PCT	FOI@walsall.nhs.uk	Contacted		9th October
Waltham Forest PCT	foi@nelft.nhs.uk	See North East London
Wandsworth PCT	ceo1@wpct.nhs.uk	See South West London		23rd June
Warrington PCT	freedomofinformation@warrington-pct.uk	Email bounced		10th October
Warwickshire PCT	WPCT.Enquiries@warwickshire.nhs.uk	Responded - very limited information	PDF	17th July
West Essex PCT	we-pct.foi@nhs.net	See Mid Essex		25th June
West Kent PCT	foi@nhs.net	See NHS Kent and Medway		23rd June
West Sussex PCT	spctc.foi@nhs.net	See NHS Sussex	Docx Doc2	23rd June
Western Cheshire PCT	foi@wcheshirepct.nhs.uk	Responded		9th October
Westminster PCT		See North West London
Wiltshire PCT	FOI@wiltshire.nhs.uk	Responded	Text	13th January
Wirral PCT	foi@wirral.nhs.uk	Contacted		9th October
Worcestershire	foirequest@hacw.nhs.uk	Responded		19th July
Wolverhampton City PCT	rebecca.ford@dudley.nhs.uk	Responded. Try foi@bcpft.nhs.uk.	Doc	12th July
NHS Wales
Cardiff & Vale	Ann.Morgan4@wales.nhs.uk	Responded	PDF	31st July
University Health Board	Gaynor.Gould@wales.nhs.uk	Responded	PDF	30th July
Bevan Health Board	Bryony.Codd@wales.nhs.uk	Responded	PDF	20th July
Cwm Taf Local Health Board	Lynn.Hudson@wales.nhs.uk Claire.Northwell2@wales.nhs.uk	Responded		20th July
Hywel Da Health Board	FOI.HywelDda@wales.nhs.uk	Responded		20th July
ABM Health Board	FOIA.Requests@wales.nhs.uk	Responded	PDF	19th July
NHS Scotland
Dumfries and Galloway	dg.feedback@nhs.net	Responded	PDF	31st July
Western Isles	wi-hb.FOI-requests@nhs.net	Responded - referred to individual GP practices		16th August
Ayrshire and Arran	foi@aaaht.scot.nhs.uk	Responded	Text	16th August
Fife	Fife-UHB.foirequestfife@nhs.net	Responded	Doc	16th August
Forth Valley	FV-UHB.freedomofinformation@nhs.net	Responded	PDF	27th July
Grampian	nhsg.foi@nhs.net christopher.morrice@nhs.net	Responded	PDF	23rd July
Greater Glasgow & Clyde	MargaretAnn.MacLachlan@ggc.scot.nhs.uk	Responded	Doc	16th August
Lanarkshire	Calvin.Brown@lanarkshire.scot.nhs.uk	Responded	Doc	12th July
Lothian	richard.mutch@nhslothian.scot.nhs.uk	Responded	Doc	16th August
Highlands	High-UHB.FOIRequestsHighland@nhs.net	Responded	DOCX	16th August
Borders	foi.enquiries@borders.scot.nhs.uk	Responded	PDF	15th July
Orkney	ork-HB.FOIRequests@nhs.net	Responded	Doc Doc2	5th July
Tayside	informationgovernance.tayside@nhs.net	Contacted		9th October
Shetland	shet-hb.foi@nhs.net	Responded	PDF	25th July
NHS Northern Ireland
Western Health and Social Care Trust	foi.request@westerntrust.hscni.net	Responded		17th July
Belfast Health and Social Care Trust	arlene.hanna@belfasttrust.hscni.net	Responded	PDF	9th July
Southern Health and Social Care Trust	Lindsey.McKenzie@southerntrust.hscni.net	Responded	PDF	9th July
South Eastern Trust	FOI.Request@setrust.hscni.net	Responded	PDF	23rd July
Northern Trust	Brian.Knox@northerntrust.hscni.net	Responded		20th July
NHS London
East London and the City	foi@elc.nhs.uk	Not contacted		23rd June
North West London	foi@nw.london.nhs.uk	Acknowledged - referred to individual service providers		29th June
North Central London	foi@nclondon.nhs.uk	Acknowledged		9th October
North East London	foi@nelft.nhs.uk	Responded	Doc	16th August
Joint Trusts
North of Tyne	foi@newcastle-pct.nhs.uk	Responded	PDF	11th July
North West	foi@nw.london.nhs.uk	No info - contact individual providers		29th June
South of Tyne and Wear	foi@sotw.nhs.uk	Responded		16th August
Tees	foi@tees.nhs.uk	Covers NHS Hartlepool, NHS Middlesbrough, NHS Redcar and Cleveland and NHS Stockton on Tees.	Doc	16th August
Humber	Eroy-pct.FOI@nhs.net	NHS Hull NHS North Lincolnshire NHS East Riding of Yorkshire North East Lincolnshire Care Trust Plus
Birmingham and Solihull	bham-solihull.foi@nhs.net	Covers Heart of Birmingham PCT, NHS Birmingham East and North, NHS South Birmingham and Solihull PCT	Text	16th August